Who should have access to personal genetic information and how will it be used children have a right to know who their genetic parents are in 2008 there were around 708,111 live births in england and wales alone, of these births many will not be brought up by their biological parents whether the child is adopted from birth and brought up by none biological parents or conceived via donor insemination, more and more children are growing up having no contact with their biological parents. Genetic information is hig hly personal and should be regarded as such however, when you start to look at the value of a dna-database you see that there are some very useful things that can come of it.
Who should have access to our personal genetic information and decide how it will be used your response should be between 5-6 sentences long and you are to list at least 1 valid source (peer-reviewed articles, trusted websites, published works, vice versa. Who should have access to personal genetic information and how will it be used family members share to: what is used for storing genetic information genetic information is highly personal an. Should the government keep all personal genetic information on file of everyone this is a hard question to answer and is one that is still being discussed personally my short answer would be: no, they shouldn't.
There is currently no evidence that unguided genetic information is inherently more problematic or less responsibly used by patients than other types of clinical information moreover, there is a powerful argument that people have the right to make their own health decisions even if others may consider their decisions rash or misinformed.
Recent advances in genetic research have made it possible to identify the genetic basis for human diseases, opening the door to individualized prevention strategies and early detection and treatment these advances hold much promise for improving health however, genetic information can also be used. Individuals have a fundamental right to access information about themselves, including genetic information while it is important to also consider the accuracy, interpretation, validity and utility of tests, this underlying principle should guide policy there is currently no evidence that dtc genetic tests pose a danger to consumers. Genetic information also includes an individual's request for, or receipt of, genetic services, or the participation in clinical research that includes genetic services by the individual or a family member of the individual, and the genetic information of a fetus carried by an individual or by a pregnant woman who is a family member of the individual and the genetic information of any embryo legally held by the individual or family member using an assisted reproductive technology.
Pertinent ethical questions that arise from genetic testing identified by the us human genome project include: “who should have access to personal genetic information, and how will it be used,” “who owns and controls genetic information,” “how does personal genetic information affect an individual and society’s perceptions of that. There have been many debates in the area of who should be able to have access to our personal genetic information. Despite the potential benefits of genetic tests, some in the medical community have been concerned that far from using them to guide wiser health decisions, people with direct access to their genetic information might misunderstand the predictive power of a risky mutation and make unwise decisions that hurt them in the long run. There have been many debates in the area of who should be able to have access to our personal genetic information many would argue that no one should have it, many argue that only the people can have access to their own dna sequences, and many also argue that physicians, or doctors so hospitals and medical records should be allowed to have access to an individual’s dna sequence.
Another issue is potentially negative implications of genetic testing on an individual’s person’s access to insurance or employment, and fairness in the use of genetic information by courts, schools, adoption agencies, and the military, for instance. Physicians, hospitals, and other care providers, of course, argue that they should have access to the medical records and other health information of any patient at any time because they need this information to provide the best possible treatment, to learn of drug interactions and allergies and other existing risks, and to avoid reinventing.